Empowering Epilepsy Community: Supportive Resources

Living with epilepsy can be a challenging journey, but finding a supportive community and helpful resources can make a significant difference in navigating this condition. "My Epileptic Life" is a website that not only provides a platform for individuals to share their personal stories and struggles with epilepsy but also offers valuable resources and support for those in the epilepsy community.

• Brave Bears Club is dedicated to creating a more inclusive world for children with epilepsy. We offer child-friendly educational resources, such as books and the unique EEG bears, designed to provide comfort, education, and representation.https://bravebearsclub.com

• Hugimals Searching for a product that was more portable than a weighted blanket to help with her nighttime anxiety, Marina couldn't find what she was looking for: a high-quality, beautifully designed, substantially weighted plush that could help ease anxiety in both kids and adults. So, after several years of researching, working with therapists, and prototyping, she created Hugimals. https://www.hugimalsworld.com

• Rare Patient Voice empowers patients and family caregivers to share their voices with researchers and companies developing products, devices, and treatments to improve lives. https://rarepatientvoice.com/rp/RiseAboveEpilepsy

• The Insighters® is a platform that connects you to paid opportunities sponsored by companies in healthcare, life sciences, & technology. It is womena nd minority owned. https://www.theinsighters.com

  
  

• Savvy Cooperative empowers people to use their health experiences to inform new products and services through surveys, interviews, product testing and more. It was founded by two patients who wanted to make sure people who shared their health experiences were fairly compensated.https://apply.savvy.coop

• Bearaby For someone living with epilepsy, a good night’s sleep is crucial. Sleep helps regulate brain activity and reduces the risk of seizures. https://bearaby.com/blogs/the-lay-low/weighted-blanket-for-epilepsy

• Brain & Life's mission is to promote brain health. Toward that effort, the American Academy of Neurology has convened every year since 2022 the Brain Health Summit, a gathering of thought leaders and policymakers from academia, research, and patient advocacy organizations and communities.Brain & Life magazine and podcast

  
  

• Lives Well Lived is hosted by Peter Singer & Kasia de Lazari Radek. Episodes consist of interviews with remarkable guests who have lived well, both in the sense of living an ethical life, but also in that they are fulfilled and happy with what they have achieved in their lives. Some of these guests will be well-known figures, but others who are doing extraordinary things will be unfamiliar to almost all of our listeners. The conversations will often cover ground that involves ethics, how to live well, and how to make a positive difference in the world. It will inspire and empower its audience to change their own lives for the better.Peter Singer